Post details: Barbara Colleen St. Clair-Hughes

01/08/11

Permalink 11:28:44 pm, by Jody Email , 769 words, 390 views   English (CA)
Categories: Thoughts on Life in General, Misc. Stuff

Barbara Colleen St. Clair-Hughes

I have been struggling for days... thinking about the recent death of my Aunt, Barbara. & I mean struggling. This was no ordinary loss. This was one of the most meaningful losses- it was the kind of loss that provokes the most intense self examination...

& I had just wanted to write a fitting tribute... a memorial to Barbara Colleen, my aunt.

She was very premature... less than a pound at birth... many of her internal organs exposed. The doctors gave her up for dead... she had surgery immediately and little Barbara Colleen held on. I remember hearing that Nana & Boppa were told that Barbie would never live into her teens. She was a tiny little doll... a precious little girl. She was 2 years my senior.

My cousin, Shari and I, were just a few months apart in age and the three of us were playmates... but for such a short time.

It was sad outgrowing Barbie... for all of us, she included.

We loved Barbara... and Barbara loved us. Barbara loved everyone. Unless she was mad... then she just wanted to control the situation and frankly, she could get very cranky. Fortunately, that did not happen all that often... especially in the early years.

I believe that when Barbie realized and processed the concept that the family was developing at a different pace, she began having a great deal of anxiety... and some depression... it was sad for all of us... Then, Barbie discovered "Beavers". There, she socialized with her peers & she was never happier, than when she was bowling or hanging out, dancing with her pals... singing.

Barbie loved music. She would play her records until she wore them out. "Little Bobby Shafto" was one of her favourites. & she loved her dolls... in particular, she was vigilant about teaching them to walk. When they came out with "walking dolls", Barbie was in her glory! She was extremely maternal.

Another favourite toy was her "Googie"... a stuffed chimpanzee with a banana in his hand. Barbie really preened her googie.

Barbie loved the family... but so often, these occasions were met with complete tears. & we understood and we wished we could fix it....After losing her mother, it became clear that Dad wasn't going to be able to take care of Barbie. & Barbie went to live in a "group home" with her peers.
There, I understand she quickly learned a great number of skills... enabling her to find employment, use public transport and do her own banking...

Various members of the family had the opportunity to visit Barbie there... and they could see that she was very happy. As Barbie got older, visits with family became overwhelming and we concluded that she was happiest left alone with her "family" at the group home.

We loved Barbie enough to respect that... and besides, it was horrendously difficult to visit and not quite know what to do... and she didn't respond well to overnight visits with family.

When notified of Barbara's passing, one of my cousins told me that she felt horrendous guilt about not having visited Barbie more often... and I comforted her by saying that I did, too

& I also mentioned that you can always find a coulda, shoulda, woulda... and that isn't fair, either... we all have had our "stuff"...

our lives have become so very complicated... raising children, caring for & losing parents, getting divorced... earning a living... and processing the transitions that life brings... those are the things that were most difficult for Barbie... she was very upset by change... and she didn't forget a thing.

Although it had been years, I recently told Fabian that I knew that if we were to visit Barbara... she would rub one index finger along the other and say, "Shame Shame Jo".... and laugh until she cried...

While we didn't seem to understand each other... on some levels- we really did....

and as I see it... our family made the best effort... to cause the least number of emotional upheavals and to respect Barbie's right to happiness... to facilitate her independence... and she blossomed & flourished with this "other" family, while we carried our love for her, in our hearts.

Barbara was fortunate in having some caregivers that spent many years with her. I'm sure she found comfort in that continuity of care. As a child, she often had respiratory related sickness... and I understand that her later years brought heart disease and some dementia... she had spent a number of years in a wheelchair, too.

I will always remember her gentle laugh.

Comments:

Comment from: Your Bro [Visitor] Email · http://www.torontoghosts.org/
Thanks Jody... it was a good post because when I did hear the news, I honestly didn't know what to do or say... and like you, was rather conflicted... and feeling more than a little guilty in some avenues.

Barbie did one amazing thing for me though... and that was increase my understanding and acceptance of certain type of developmental illnesses... without the taint of being over-the-top on forcing others to be exactly the same as me - but learning to let people have their "moment", then educate them with a talk... trying to bring them "up to speed" as it were... and for that, wherever she is, I hope she knows I'm eternally grateful.

This was a great memorial to read through... and thanks for posting it.
PermalinkPermalink 01/09/11 @ 08:25
Comment from: Jody [Member] Email · http://www.getrealinontario.com/
Addendum: this evening, catching a moment of Sarah Palin's season finale... and revisited the scene in which she meets a sweet, 10 yr-old boy with down syndrome and is brought to tears, seeing in him, the future of her beloved son Trig.


Barbara Colleen St Clair-Hughes in 1960 aged 4

last evening, I lay in bed... thinking... that I wrote about my aunt barbie last night... and never once mentioned the words "down syndrome" or mongoloid retard or retarded or developmentally challenged... or any of the other

words that have moved in and out of "politically correct" over my lifetime... and frankly, it has always upset me that whatever the proper word... it would seep into urban language and be hurled as an insult at others...

and then, I smiled... you know, I live in a small town with a well-organized community integration group... and so, we have plenty of special people... and I have always referred to them as "The Crayon Crew"... and I meant it affectionately... because I spent so much time colouring with Barbara... or using a crayon and showing her how to write her name.

It started out almost mirror image... the letters varied in sizes... often peetering out to tiny letters at the end... and Barbie would be laughing and laughing and laughing...

It became a game we played, for as long as she lived at home with the family...

and I know the sort of people who work with those with intellectual impairment...

and I know that they can do something that our family couldn't do... they can turn teenagers into adults... proud and healthy,happy adults... who sometimes get cranky... but mostly laugh and sing.

it doesn't get better than that.
PermalinkPermalink 01/09/11 @ 22:24
Comment from: jacque [Visitor] Email · http://yellowdoggrannie.blogspot.com
what a beautiful tribute to her. Goddess bless you both.
PermalinkPermalink 01/09/11 @ 23:47
Comment from: Jody [Visitor] Email
talking with mom on the phone tonight... reminiscing about her sister Barbara... who was born, after mom was married and away from home... Barbie never believed that Pat was her sister... whenever the topic came up, Barbie would laugh and laugh and laugh... and would think it was a great big joke.

It was so cute that people would often instigate...
PermalinkPermalink 01/14/11 @ 20:24

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Welcome and thanks for visiting the blog of Jody Didier, real estate agent, mom, and general all around Bancroftian! This blog contains her thoughts on being a real estate agent, real estate information in general, and occasional rants and raves about life in general...

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